Latest News for Parents & Carers

The Children’s Commissioner for England is looking for parents, carers and children to help contribute to its research on Research into Isolation Booths. They want to speak to children who have spent time in isolation booths and therefore are looking for parents and carers who know about this practice being used, and have children who are happy to talk with us about it. If you are interested then, please contact Alice Talbot on 020 7340 8113 or email alice.talbot@childrenscommissioner.gov.uk before Friday 18th October.

Working Families has set up ‘Waving not drowning’ Facebook page as a dedicated network and advice service for parents of disabled children who work or wish to work. This page is a forum where carers or parents of disabled children can get support, share their experiences, and ask us questions. The group is designed for you, so please feel free to contribute and give your feedback.

The Light House community short breaks service is under review so that improvements can be made for the children and young people who currently use the service, those on the waiting list and importantly the children of the future, and their families and carers. In order to do that, they need to hear from people who use the service or who might be using it in the future.

Deadline: Tuesday 3 December 2019 5.00pm

Ailsa, who has cerebral palsy, has used wheelchairs all of her life. But the ride has been far from smooth! In this blog post for Disability Horizons, she tells us about her experiences with manual and electric wheelchairs, and how shouting about them helped to raise awareness and create change for her and others.

Covering everything from disability benefits, special education, health and diagnosis, and accessing social care, The Helpful Podcast for families with disabled children is another way for you to access invaluable and trusted information. Thanks to Contact!