Latest News for Parents & Carers

NDCS has launched ground-breaking new research that will follow deaf young people as they become independent adults. This research is the first of its kind and the results will help to improve the support that deaf young people get in future. It is called READY, which stands for Recording Emerging Adulthood in Deaf Youth. The research is open to deaf young people aged 15–18 with all degrees of permanent hearing loss and all language preferences.

Researchers at University College London in a study suggested, children who spend lots of time sitting still are more likely to develop depression by the age of 18. “The number of young people with depression also appears to be growing and our study suggests that these two trends may be linked.”

DSActive aim to provide as many opportunities as possible for people with Down’s syndrome to lead active and healthy lives. They are looking for people who care for someone with Down’s syndrome to take part in their research about sport and activity. If you’d like to share your experiences, please complete this online survey. The closing date is 17th March 2020.

When Jasper Hayes was born in April 2007 by emergency Cesarean, a midwife popped into the ward to tell his mum Emma ‘Your son’s OK but he’s missing an ear’. Often paired with other conditions, microtia is a malformation of the external part of the ear or pinna. Emma from Nottingham tells us her story.

The disability equality charity, Scope is developing a new, inclusive running event. It is looking for people to share their views via a survey to help it to shape the event. It is keen to hear from disabled people of varying activity levels, as well as non-disabled people who have a connection to disability. Respondents will be compensated for their time. If you’re interested in finding out more please email heather.wilson@scope.org.uk.