Latest News for Parents & Carers

Research project on the impact of changes in healthcare delivery

The National Children’s Bureau is working with Oxford University and Nuffield Department of Population Health to recruit parents and caregivers for a research project on the impact of changes in healthcare delivery on the care of children with chronic illness during the Covid-19 pandemic. Looking specifically to talk about these health conditions: Asthma, Mental Health, Cancer, Diabetes, Neurodiversity i.e. ADHD, Autism, Dyslexia and Complex health conditions. Please email ghassard@ncb.org.uk for more information.

Children and Young People Surveys for UK Commission on Bereavement

The UK Commission on Bereavement has launched national surveys for children and young people bereaved in the last three years to get their views on how families, friends, schools and services can provide support. It is important that the Commission hears directly from children and young people to inform their recommendations to government and other decision-makers about how bereavement support can be improved. Surveys for 5-12 year olds and their parent or carer, 13-15 year olds and 16-17 year olds are open until Monday 31st January.

Niamh’s Law: Mandatory disability awareness training for public facing staff

Niamh Jarvis-Smith was a carer for Disabled children. She sadly died last year. Drew Taylor, her partner, has started a petition to champion Niamh’s passion for disability rights. On many occasions during days out, staff members discriminated against the needs and rights of the children she was looking after. These include but are not limited to experiences at cinemas, swimming pools, soft-play, restaurants, and theme-parks. The petition urges the government to introduce mandatory disability awareness training for all public facing staff in the UK, across all industries.

Blue plaques scheme

English Heritage is exploring the stories of historical figures with both visible and hidden impairments and considering the impacts disability had on their lives. The London blue plaques scheme was started in 1866 and is thought to be the oldest of its kind in the world. Across the capital over 950 plaques, on buildings humble and grand, honour the notable men and women who have lived or worked in them.

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