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Mum ‘reassured’ over vital drug access decision

Emily’s four-year-old son, Max, from Spinkhill, near Killarmarsh in Derbyshire, has CLN2 Batten disease, a rare degenerative genetic disorder that causes a decline in a child’s ability to walk, speak and see. He is symptom-free and has been receiving Brineura, the only approved treatment that slows the condition’s progress, since he was one.

Boy, 8, gets bespoke Lego prosthetic arm

The Portsmouth Enablement Centre (PEC) made the limb for Tobi, who was born with a limb difference. His mum, Debra, said her son loved showing off his new prosthetic, and said the care he had received from the PEC was “phenomenal”.

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