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‘Tourette’s no longer defines me – I can put my music out to the world’

Just six months ago, musician Grace Cope, 19, was unable to perform in front of anyone. Now she is lead vocalist on a song to raise awareness of Tourette’s syndrome and being mentored by a veteran producer who has worked with The Rolling Stones, Led Zeppelin and Duran Duran. Diagnosed with Tourette’s in 2021, Grace, of Bedford, has campaigned for three years on TikTok to reduce the stigma around her neurological condition.

‘Showing hidden disability through my son’s eyes’

A mother has produced a series of photographs aimed at showing through her son’s eyes what it is like growing up with a hidden disability. Bo Willow Harris took the images for her final project at the University of Sunderland in the hope it would help more children like Hendrix be seen and understood.

Mum ‘reassured’ over vital drug access decision

Emily’s four-year-old son, Max, from Spinkhill, near Killarmarsh in Derbyshire, has CLN2 Batten disease, a rare degenerative genetic disorder that causes a decline in a child’s ability to walk, speak and see. He is symptom-free and has been receiving Brineura, the only approved treatment that slows the condition’s progress, since he was one.

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