Latest News for Parents & Carers

The government’s housing and regeneration agency has failed to explain why its new five-year strategy fails to mention disabled people, or the need to address the accessible housing crisis.

The MND Association has found it takes an average of 375 days for people in England to get essential home adaptations through the government’s disabled facilities grant (DFG) due to growing delays in the system. But a third of people with MND die within a year of diagnosis, and about half die within two years, meaning they are spending the last months of their lives fighting for support, with many dying in unsafe and unsuitable homes.

Britain’s triple Deaflympics gold medallist Charlotte Gower on her frustrations at how her and team are treated.

The Government has launched the Milburn Review to investigate why so many 16–24‑year‑olds are not in education, employment or training (NEET). The review is now calling for evidence from young people, families and employers. Disabled young people must be part of this conversation too.

A paraplegic engineer from Germany blasted off on a dream-come-true rocket ride with five other passengers on Saturday, leaving her wheelchair behind to float in space while beholding Earth from on high.