Latest News for Parents & Carers

Autism East Midlands has joined up with East Midlands Railway (EMR) to look at ways in which train travel could be made more autism friendly. Crowds, noises and lighting are a few of the environmental factors that can make train travel uncomfortable or even overwhelming for those with sensory needs or autism. EMR asked Autism East Midlands to carry out autism friendly environmental audits on their railway stations in the region, with the aim being to highlight potential stress triggers. Recommendations for small improvements have since been put forward.

It has been reported that disabled people could be amongst the worst affected by the increase in living costs. This includes young people with disabilities and although university students with a disability may be able to claim Disabled Students’ Allowance (DSA) to help cover additional costs for things such as equipment or support, unfortunately, some still feel that they are at a financial disadvantage compared to their peers without additional needs.

Following a ruling by the Upper Tribunal from 21st August 2020, there has been a change in the way in which the Department for Work and Pensions (DWP) considers whether someone can wash or bath safely, as part of the Personal Independence Payment (PIP) assessment. In particular, whether a deaf or hearing-impaired person would be able to hear a standard fire alarm while washing or bathing. As a result of the ruling, PIP claims which were decided on or after 21st August 2020 may be reviewed. Those that are affected will be contacted by DWP.

IPSEA has written to Baroness Hallett, chair of the UK-wide public inquiry into Covid-19, regarding the draft terms of reference which were released in March. IPSEA has expressed concerns that the terms of reference do not include anything specific about the impact of the pandemic on children and young people. IPSEA raised the issue that children’s rights to special educational provision, therapies and mental health support were suspended during the pandemic, which has greatly impacted on children and young people with a high level of needs.

The government has announced plans to invest £4.6 million in the Volunteering Futures Fund. The investment will provide 7,800 new opportunities for young people, people with disabilities and those experiencing loneliness to volunteer across 160 community organisations from the arts, culture, sport, civil society, youth and heritage sectors. The idea behind the investment is to allow those who may otherwise experience barriers to access volunteering to enjoy the personal benefits of making a difference to their local community.