Motor neurone disease patients in England die waiting for home adaptations, campaigners say

The MND Association has found it takes an average of 375 days for people in England to get essential home adaptations through the government’s disabled facilities grant (DFG) due to growing delays in the system. But a third of people with MND die within a year of diagnosis, and about half die within two years, meaning they are spending the last months of their lives fighting for support, with many dying in unsafe and unsuitable homes.