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Hertfordshire couple raise funds for daughter’s rare HNRNPH2 condition

by Charlotte Dolman | Oct 4, 2023 | Parents & Carers

Autumn has a rare genetic neurodevelopmental disorder which just 17 other people in the UK have been diagnosed with. Her parents Ben and Emily Shaw are raising money for Yellow Brick Road Projects, which supports families with children who have HNRNPH2 and funds...

Family of six-year-old dying of ‘Childhood Dementia’ faces homelessness

by Charlotte Dolman | Oct 2, 2023 | Parents & Carers

The mother of a six-year-old girl dying of childhood dementia fears they may be forced to live out her final years in hostels – after losing their home. Hollie Self was recently told her daughter Phoebe has just five years left to live due to the rare genetic...

Musician reveals ‘discrimination’ disabled artists face in an industry that ‘isn’t accessible’

by Charlotte Dolman | Sep 29, 2023 | Parents & Carers

An artist has spoken out about the discrimination she says she and other disabled musicians face in an industry that “isn’t accessible”. Right Keys Only is an electronic dance musician who has a condition called Erb’s Palsy, which means her...

Young autistic people still dying despite coroner warnings over care

by Charlotte Dolman | Sep 27, 2023 | Parents & Carers

Dozens of young autistic people have died after serious failings in their care despite repeated warnings from coroners, BBC News has found. Their investigation found issues that were flagged a decade ago are still being warned about now. The government says £4.2m is...

Revealed: covert deal to cut help for pupils in England with special needs

by Charlotte Dolman | Sep 25, 2023 | Parents & Carers

The government has quietly signed a contract targeting 20% cuts to the number of new education plans for children with special educational needs and disabilities (Send) to bring down costs, the Observer can reveal.
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