A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could “tear his skin”. Twenty month old Albi was born with a severe form of recessive dystrophic epidermolysis bullosa (RDEB), a disorder which causes his skin to break out in blisters or tear with the slightest friction.
Latest News Stories
- Disabled bus pass holders to get free travel at all times, government announces
- Pupils with Send plans in England likely to double to one in 10 in rush for support
- ‘Powerful example’: minister looks to Essex school for blueprint to transform Send provision
- The boxing coach on a mission to help disabled children
- You and Me (and Whoever Comes Next) review – theatre crafted with love and care
