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A cuddle could tear my son’s skin due to rare disorder

by Charlotte Dolman | May 5, 2025 | Parents & Carers

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could “tear his skin”. Twenty month old Albi was born with a severe form of recessive dystrophic epidermolysis bullosa (RDEB), a disorder which causes his skin to...

Fix SEN funding to avoid ‘absurd’ council deficits in England, IFS says

by Charlotte Dolman | May 2, 2025 | Parents & Carers

Council deficits in England could spiral to “absurd” levels in excess of £8bn in less than three years without radical reform of special educational needs funding, a leading economics thinktank has said.

Pupil creates ‘musical dream’ with Makaton choir

by Charlotte Dolman | Apr 30, 2025 | Parents & Carers

Despite being non-verbal 17-year-old Troy McKay has used his voice to create a unique choir. Troy is a pupil at Fleming Fulton Special School in Belfast, and communicates through an app on his wheelchair.

RNIB has ‘washed its hands’ of braille users after ending free service, says blind campaigner

by Charlotte Dolman | Apr 28, 2025 | Parents & Carers

A disabled campaigner claims the disability charity RNIB has “washed its hands” of those with the most significant levels of visual impairment, after scrapping its long-established free braille transcription service.

‘I’m still sick. I’m still disabled. But I’m proud of my body’: Frances Ryan’s manifesto for disabled women

by Charlotte Dolman | Apr 25, 2025 | Parents & Carers

Women with disabilities are the biggest minority group in the world, but are still shut out of society. In an extract from her new book, the writer Frances Ryan reveals how that is changing – and what more needs to be done.

Disability groups ‘stepping back’ over benefit cuts

by Charlotte Dolman | Apr 23, 2025 | Parents & Carers

A number of Deaf and Disabled People’s Organisations have told the BBC they are considering stepping back from working with the government over proposed benefit cuts.
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